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Lead Moderator WITM Hot Topics Moderator |
Military personal, stationed in Germany, Japan etc. often hold donor drives...the DoD picks up all associated costs.. If you wish to become involved, Or persons from other countries, wishing to help out, can be donors also..
Military, and civilan contractors, may go to http://www.dodmarrow.com the information is then forwarded to the National Registry.. Hope this information is useful.. |
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Again...incredibly helpful!
Much appreciated! |
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suspended 10 days disruptive posting personal attacks 19 Jan 08 MD |
bump!
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Keep Smiling, Everyone Will Wonder What You've Been Up To! |
My prayers are with the family !
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Thanks for the bump Arielski...keep 'em coming!
Bergy77, thank you so much! PLEASE HELP US KEEP THIS THREAD UP HIGH ON THE LIST! Hannah had a very rough day yesterday. Thankfully she is out of ICU and the ravaging infection is better. She is able to resume chemo. Sadly, the chemo is giving her arm and hand pain. She is now having some kind of issue with her eye. They did a CT scan of her head yesterday and Tom and Mei Ling will meet with an opthlamologist today. Mei Ling is having an amnio today to see if her unborn child could be a match. Their other two children did not match. Ironically, they found out the other two children are a match to each other, so there is hope about the unborn baby, yet Mei Ling is not due until late summer. (I think they take it from the cord blood.) As mentioned early on, a good match may need to have an Asian/other minority component. The Rumping children may not look Chinese (Tom is very tall, very blond), but Mei Ling laughs and says now there's proof on the inside, what with this "Asian component" and all. For more information on bone marrow testing, donation, and transplant, visit www.marrow.org. You must be over 18 to be tested and registered. Also, to see about getting tested and registered for the National Bone Marrow Donor Program, you should call 800-Marrow2 (800-627-7692) to find out where to go in your area and how to get an appointment or kit. Samples for testing are either taken with a finger stick blood sample, or swab of cheek cells. Military, and civilan contractors, may go to http://www.dodmarrow.com the information is then forwarded to the National Registry. PS If you are a minority, it is my understanding the testing is free. It may be free otherwise, too. Won't hurt to ask! Thank you to all who have read this thread! |
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Highly Experienced Member |
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Lead Moderator MILITARY HISTORY Freedom!!! ![]() |
That one Pipes posted works... RE me...I don't measure up...seems past "heart" issues are reason for exclusion... I am sorry... |
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New Member |
Hi Orangecat97,
I double-checked at www.marrow.org, and its says: Potential Marrow or Peripheral (circulating) Blood Cell Donors Are you interested in becoming a donor? You can join the NMDP Registry as a potential marrow or peripheral (circulating) blood cell donor if you are between the ages of 18 and 60, in good general health and willing to be available if you are ever identified as a match for a patient in need. You can get even more information at: http://www.marrow.org/DONOR/FAQs/Donor_FAQs/index.html Thanks so much for your interest! |
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New Member |
Strobelvets,
Just your interest and your posting on this thread alone is super helpful! I mean that! Thank you so much! Please keep up on this thread, help me keep it bumped up! Your support is amazing! PaulaKevin |
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Lead Moderator MILITARY HISTORY Freedom!!! ![]() |
Least I can do...you are in my prayers! |
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Member |
I can only offer my prayers but I gladly do that in earnest.
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Lead Moderator MILITARY HISTORY Freedom!!! ![]() |
* |
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Experienced Member |
All done Paula and my doc was suppose to send results late this morning. He is very familiar with all the in's and out's of this.
I have the HLA typing Paula. My doc IS sending it. And I am not so amazing Paula. I've had a daughter with cancer and it was many years of grueling bone marrow tests, blood work and chemo. I only wish this procedure had been perfected when she was so sick. I remember the day she actually coded. It's not something you want other parents to go through if you can help in such a simple, small way. Please keep us posted. Thank you. |
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New Member |
IzzyBizzy,
God Bless You, God Bless You, God Bless You! ~PaulaKevin |
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New Member |
spcfcs and strobelvets,
You're so special.....thank you so much for your support, thoughts and prayers. I'll keep everyone posted on Hannah's situation. As of yesterday, Mei Ling said she was to have the amnio today to test their unborn child....thing is, she's due mid summer, so.... Hannah had a bad day yesterday, she said. Hopefully today has been better... I'll let you know as I know, Paula (and Kevin!) |
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Lead Moderator MILITARY HISTORY Freedom!!! ![]() |
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Lead Moderator MILITARY HISTORY Freedom!!! ![]() |
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Forums Administrator THE ROBOCOP |
Thanks again to all of you who have expressed interest in either getting
tested, or for getting the word out, regarding our need for a bone marrow donor. We are sorry if the process has been frustrating and/or confusing for some of you. Hopefully the following information will clear things up. First, when calling the 800-MARROW2 (800-627-7692) number, DO NOT say that you want to get tested for "Hannah Rumping." The National Donor Registry does not do individual testing. Individual testing because it is very costly, requires paperwork from our doctor(s), and would take several weeks. By joining the National Donor Registry, your information will get put into the National Registry immediately and our search coordinator here at Children's receives updates daily of all new registrants that potentially match Hannah. We only asked that you get a copy of your results to help identify you and speed up the process, but it seems that is not really necessary. By joining the National Registry you are saying you would be willing to help anyone, but you would always have the option of declining if they did contact you regarding donation. Therefore, if you are willing to get tested or are telling others to get tested, please remind them to not say that they are getting tested for Hannah. If you/they do, the National Donor Registry will try to send them elsewhere and will give them incorrect information. Remember, for more information on bone marrow testing, donation, and transplant, visit www.marrow.org. You must be over 18 to be tested and registered. I hope this clears up any confusion. "I know you believe you understand what you think I said, but I am not sure you realize that what you heard is not what I meant." - Oscar Wilde |
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Hey, Rob, thanks! I really appreciate your updating everyone regarding this!
~PaulaKevin |
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