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Forums Administrator
THE ROBOCOP
Picture of RobRodriguez
Posted
When I think of the issues that many of the military families deal with, I think of my personal experiences... separation, stress, never knowing where you will PCS to next. But there are deeper issues that we normally don't consider unless it happens to us or someone we know. Here is an example:

We have friends, Tom and MeiLing Rumping. Tom is a former Marine, who now works at Wright-Patterson Air Force Base.

Their 2-year-old is in DESPERATE need of a bone marrow transplant. Neither of their other two children were matches and now they are trying to test their unborn child. Hannah has a rare form of leukemia and is in Cincinnati Children's. She JUST got moved out of ICU where she had a life-threatening infection and they almost lost her several times. She now will resume chemo and hopefully a donor will be found quickly. A complication is that Hannah apparently needs an "Asian component" in a donor, as she's part Chinese.

Hannah is not unique in this struggle. There are many other military and civilian families who are in similar situations and suffer thorugh these deep issues.

The point is that you can help. To see about getting tested and registered for the National Bone Marrow Donor Program, you should call 800-Marrow2 (800-627-7692) to find out where to go in your area and how to get an appointment or kit. Samples for testing are either taken with a finger stick blood sample, or swab of cheek cells.

If you so choose, you may also contact Hannah's mom, Mei Ling: mlrumping@cinci.rr.com

Many thanks.
 
Posts: 992 | Registered: Mon 10 April 2006Reply With QuoteEdit or Delete MessageReport This Post
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THE ROBOCOP
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Cool
 
Posts: 992 | Registered: Mon 10 April 2006Reply With QuoteEdit or Delete MessageReport This Post
Super Member
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best wishes to the family...


 
Posts: 32822 | Registered: Thu 18 August 2005Reply With QuoteEdit or Delete MessageReport This Post
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MILITARY HISTORY



Freedom!!!

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[QUOTE]Originally posted by strobelvets:
I have an asian component..it seems..the Native American strands are screened out...yet I have no Asian ancestors...I will test for her...

This message has been edited. Last edited by: strobelvets,
 
Posts: 13451 | Registered: Wed 06 July 2005Reply With QuoteEdit or Delete MessageReport This Post
Basic Training
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Dear strobelvets,

Here is some more information on getting tested for Hannah Rumping. You apparently get a kit or get tested and can receive papers to forward to Tom and MeiLing to see if you're a match. Here's the latest post from MeiLing on Cincinnati Children's Hospital Carepages with information about getting tested.

"March 02, 2007 at 04:31 PM EST
PRAISE GOD, HANNAH’S OUT OF THE ICU!
MORE INFORMATION ON DONORS

Last night the doctor’s decided that Hannah was well enough to move back to the Hematology/Oncology floor and that they would continue to monitor her slight fever and getting her back to solid foods, etc.

So far, she has remained somewhat sleepy/lethargic and has, at times, run a low-grade fever. She also has complained about stomach pain, therefore, they are giving her some pain medication (morphine) and are going to send her for another CT scan. She already had her chest x-rayed today. In addition, they are continually sending samples of her blood, urine, and stools for testing. In short, they are watching her VERY closely, which makes us very happy.

Thanks to all of you who have expressed interest in either getting tested, or for getting the word out, regarding our need for a bone marrow donor. We now have more clear information on how to get tested… First, to see about getting tested and registered for the National Bone Marrow Donor Program, you should call 800-Marrow2 (800-627-7692) to find out where to go in your area and how to get an appointment or kit. Samples for testing are either taken with a finger stick blood sample, or swab of cheek cells.

Once again, there should not be a charge if you classify yourself as a minority. We may also host a local drive, and Tom’s work may also have a drive, specifically for Hannah, but we have not confirmed any of that at this time. If you do get registered on your own, please ask them to provide you a copy of your “HLA Typing” (results) and forward a copy to us to help speed up the search process. If you do not have our address, email me and I’ll forward it to you (mlrumping@cinci.rr.com). For more information on bone marrow testing, donation, and transplant, visit www.marrow.org. You must be over 18 to be tested and registered.

Please continue to pray for Hannah’s healing and recovery. Please also pray that a suitable donor is found for her bone marrow transplant and that our new baby will also be a match for Hannah. We are going to test our expectant baby via amniocentesis on Monday to see if he/she may be a match – it will take 3-4 weeks for us to get the results. So also pray for our new baby’s health and for me (Mei Ling) that the procedure Monday goes well.

God’s blessings to you all,
Mei Ling, Tom & Family"

Strobelvets, we cannot thank you enough.
Thank you!!!!!!!!!!!
 
Posts: 64 | Registered: Sat 03 March 2007Reply With QuoteEdit or Delete MessageReport This Post
Basic Training
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Dear RobRodriguez and outlaws93,

Thank you so much for starting this post, RobRodriguez, and thank you for your kind words, outlaws93.

Very sincerely,
PaulaKevin
 
Posts: 64 | Registered: Sat 03 March 2007Reply With QuoteEdit or Delete MessageReport This Post
Experienced Member
Picture of Woody_in_La
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My prayers will be with all of you.


 
Posts: 5918 | Registered: Tue 17 August 2004Reply With QuoteEdit or Delete MessageReport This Post
Basic Training
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Thank you so much, Woody_in_la!
That means the world!
~PaulaKevin
 
Posts: 64 | Registered: Sat 03 March 2007Reply With QuoteEdit or Delete MessageReport This Post
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I was just recently tested (1 Mar in fact). I have other medical issues, but none that would effect a bone marrow transfer. Well, it hasn't before. Do I contact the above address? I am already registered btw.
 
Posts: 4797 | Registered: Mon 15 January 2007Reply With QuoteEdit or Delete MessageReport This Post
Experienced Member
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quote:
Originally posted by PaulaKevin:
Dear strobelvets,

Here is some more information on getting tested for Hannah Rumping. You apparently get a kit or get tested and can receive papers to forward to Tom and MeiLing to see if you're a match. Here's the latest post from MeiLing on Cincinnati Children's Hospital Carepages with information about getting tested.

"March 02, 2007 at 04:31 PM EST
PRAISE GOD, HANNAH’S OUT OF THE ICU!
MORE INFORMATION ON DONORS

Last night the doctor’s decided that Hannah was well enough to move back to the Hematology/Oncology floor and that they would continue to monitor her slight fever and getting her back to solid foods, etc.

So far, she has remained somewhat sleepy/lethargic and has, at times, run a low-grade fever. She also has complained about stomach pain, therefore, they are giving her some pain medication (morphine) and are going to send her for another CT scan. She already had her chest x-rayed today. In addition, they are continually sending samples of her blood, urine, and stools for testing. In short, they are watching her VERY closely, which makes us very happy.

Thanks to all of you who have expressed interest in either getting tested, or for getting the word out, regarding our need for a bone marrow donor. We now have more clear information on how to get tested… First, to see about getting tested and registered for the National Bone Marrow Donor Program, you should call 800-Marrow2 (800-627-7692) to find out where to go in your area and how to get an appointment or kit. Samples for testing are either taken with a finger stick blood sample, or swab of cheek cells.

Once again, there should not be a charge if you classify yourself as a minority. We may also host a local drive, and Tom’s work may also have a drive, specifically for Hannah, but we have not confirmed any of that at this time. If you do get registered on your own, please ask them to provide you a copy of your “HLA Typing” (results) and forward a copy to us to help speed up the search process. If you do not have our address, email me and I’ll forward it to you (mlrumping@cinci.rr.com). For more information on bone marrow testing, donation, and transplant, visit www.marrow.org. You must be over 18 to be tested and registered.

Please continue to pray for Hannah’s healing and recovery. Please also pray that a suitable donor is found for her bone marrow transplant and that our new baby will also be a match for Hannah. We are going to test our expectant baby via amniocentesis on Monday to see if he/she may be a match – it will take 3-4 weeks for us to get the results. So also pray for our new baby’s health and for me (Mei Ling) that the procedure Monday goes well.

God’s blessings to you all,
Mei Ling, Tom & Family"

Strobelvets, we cannot thank you enough.
Thank you!!!!!!!!!!!


I will have them put on my church's "extra special" list immediately.

Is there anything else they need?
 
Posts: 4797 | Registered: Mon 15 January 2007Reply With QuoteEdit or Delete MessageReport This Post
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IzzyBizzy,
You are fabulous! Prayers are needed and incredibly welcomed, thank you.

If you're already tested, you can get a copy of your "HLA Typing" and send it to Mei Ling Rumping. You can contact her for more information at: mlrumping@cinci.rr.com

Thank you!!!!!!!!!!!!!!!!
 
Posts: 64 | Registered: Sat 03 March 2007Reply With QuoteEdit or Delete MessageReport This Post
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I will call 0800 Monday and have it done post haste. I am not of any Asian decent, but I have matched to one other person of mixed Asian/American mix. No guarantees, but I can at least have the info sent.

Gotta tell ya though, I am a BIG COWARD with those procedures. I've done it 5 times now and I still HATE those big "cork screws". Eek
 
Posts: 4797 | Registered: Mon 15 January 2007Reply With QuoteEdit or Delete MessageReport This Post
Member
Picture of HONOLULU58
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Can you list what would make one ineligible to donate bone marrow, might save some people time. Reason I ask is I recently found that some of the guidelines for giving blood have changed in the last 2 years.

Your family are in my prayers.
 
Posts: 409 | Registered: Wed 07 June 2006Reply With QuoteEdit or Delete MessageReport This Post
Lead Moderator
MILITARY HISTORY



Freedom!!!

Picture of strobelvets
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quote:
Originally posted by IzzyBizzy:
I will call 0800 Monday and have it done post haste. I am not of any Asian decent, but I have matched to one other person of mixed Asian/American mix. No guarantees, but I can at least have the info sent.

Gotta tell ya though, I am a BIG COWARD with those procedures. I've done it 5 times now and I still HATE those big "cork screws". Eek


Sounds like ya did it anyway Izzy...SALUTE!

RE descent..I rather fancy myself of American descent... Wink

That being said...so is this little girl...I will check into this thing straight away...
 
Posts: 13451 | Registered: Wed 06 July 2005Reply With QuoteEdit or Delete MessageReport This Post
Lead Moderator--Women In The Military

Vicious Flirt
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quote:
Originally posted by HONOLULU58:
Can you list what would make one ineligible to donate bone marrow, might save some people time. Reason I ask is I recently found that some of the guidelines for giving blood have changed in the last 2 years.

Your family are in my prayers.


Yes, there are some medical guidelines for donors, that said, the restrictions are few..

Guidelines

Join the registry today- it saves lives!

To the family, your in my thoughts and prayers!
 
Posts: 3760 | Registered: Thu 22 June 2006Reply With QuoteEdit or Delete MessageReport This Post
Basic Training
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Thank you to all who have read this thread today!
Thank you to all who have posted today!

I just now spoke with Mei Ling about Hannah. It's been a rough day for Hannah...and her family.

To Izzy Bizzy, you rock! To give of yourself so freely is amazing. Thank you so much for considering. If you have already registered with the bone marrow registry, the Cincinnati Children's coordinator should receive notification, should you match. However, since you have already matched before with someone with an Asian component, you may want to send your HLA typing to expedite a comparison to Hannah Rumping. Again, you are amazing!!! Five times already...wow!

To Honolulu58, thanks for posting! Thanks especially for the prayers. Below, your question is addressed by pipdreamsandbabies. You can also call: 800-Marrow2 (800-627-7692). Also visit www.marrow.org (which is where pipedreamsandbabies directed you, I believe). Thanks again so much for your interest in this precious little girl.

To strobelvets , I see you've been reading this thread again...thanks so much for your post and for checking into this!

To pipedreamsandbabies, thanks for your help on guiding people to information! That is so very helpful! Unbelievably helpful. Thank you for your thoughts and prayers.

With a grateful heart,
~PaulaKevin
 
Posts: 64 | Registered: Sat 03 March 2007Reply With QuoteEdit or Delete MessageReport This Post
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I tried to sign up as a bome marrow donor a few years ago, but was told they aren't interested in people of exclusively Northern European ancestry. I wonder if this has changed?

So, I just sent a financial donation to help fund their work instead. Not much, but every bit helps.

I'll keep Hannah and her family in my prayers.
 
Posts: 3121 | Registered: Mon 25 April 2005Reply With QuoteEdit or Delete MessageReport This Post
Basic Training
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Know what, Arielski? Your willingness to TRY is what counts! Good for you!

I don't know if requirements/needs have changed. I am very surprised you were told that in the first place, but I am not completely knowledgeable in all aspects of donor registry. I suppose one could ask at 800-MARROW2 (800-627-7692).

Nevertheless, thank you so much for your kind words, prayers, and willing spirit.

Take care!
 
Posts: 64 | Registered: Sat 03 March 2007Reply With QuoteEdit or Delete MessageReport This Post
Lead Moderator
MILITARY HISTORY



Freedom!!!

Picture of strobelvets
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quote:
Originally posted by Arielski:
I tried to sign up as a bome marrow donor a few years ago, but was told they aren't interested in people of exclusively Northern European ancestry. I wonder if this has changed?

So, I just sent a financial donation to help fund their work instead. Not much, but every bit helps.

I'll keep Hannah and her family in my prayers.


Don't know...but may be related to affected populations? And probable Donors...

Thank you for helpin Sir...it is enough that you tried...
 
Posts: 13451 | Registered: Wed 06 July 2005Reply With QuoteEdit or Delete MessageReport This Post
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Strobel,actually I'm not a "sir", and please don't call me "ma'am" because that sounds like my mother. Wink

I know there is a shortage of donors for specific ethnic/racial groups and for bi-racial patients.

Outreach to identify eligible African Americans has been a huge issue over the past decade or so, since sickle-cell anemia can be treated through bone marrow transplant.

I'm not sure about Asian donors. Are there bone marrow registries in China and other Asian countries?
 
Posts: 3121 | Registered: Mon 25 April 2005Reply With QuoteEdit or Delete MessageReport This Post
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